trisomy 13 baby girl

Delivering an Angel: A Mother’s Story of Loving and Losing her Daughter to Trisomy 13

Often times we only have the opportunity to hear stories of happy, healthy pregnancies that end with a healthy baby. The stories of mothers who have delivered precious children, lost too soon, often times go unheard. I was fortunate to grow up with Nicole and she recently told me about her precious daughter who had passed away from Trisomy 13. Her unconditional love for her daughter and the small amount of time shared is so heartbreaking and inspiring. She has gone on to have more children but, of course,  holds a special place in her heart for her Kasidy Aileen. In honor of March being Trisomy Awareness month this is Nicole’s story.

The Beginning

I was 19 years old when I found I was pregnant with my daughter Kasidy Aileen. Definitely nothing I planned on happening so young and knowing I had to do this alone made it 10 times more scary.  I had chosen to use a midwife for my pregnancy and delivery. My pregnancy seemed pretty normal and I loved every moment of it.

Labor and Deliver

On July 1st I went into labor and called my friend to take me to the birth center.  That was the longest 30 minute drive ever. Now unlike hospital birth centers are very personal and make you feel like you’re at home. The rooms are beautifully furnished with king size beds. I had to chosen to do a water birth in the jacuzzi. The warm water and jets really help with the contractions. I also was able to walk around, use an exercise ball and eat and drink when I wanted. You are free to experience labor on your own terms, not stuck in a bed.

trisomy 13 baby girl

Kasidy Aileen

After 11 hours of a long labor my beautiful daughter entered the world. I was able to pull her out of me and placed her directly on my body. I then noticed she had 6 fingers, 6 toes and a cleft lip palate and she was airlifted to a hospital. I found out later she had Trisomy 13. During my pregnancy I didn’t have any indication there was any problems. They told me there was nothing they could do to save her. Those are the hardest words any mom can ever hear.

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Going Home

I then chose to take her home and love her and make her comfortable while she was with me. She gained her wings 28 days later. But it was 28 days I got to hold her, feed her,  sing her songs, rock her to sleep and kiss her a million times. She was surrounded by so much love and family. Even though this was the hardest thing I ever had to go through it was a special experience I got to do with her.  She taught me so much in her short little life here with me. I am so blessed that God chose to give me a very special angel. This experience was so intimate and personal. I will never forget that time with her.

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